Until We Knew, Twice: Life With MND/ALS And FTD

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Until We Knew, Twice: Life With MND/ALS And FTDBy Elisabet O Klint A Memoir OUT NOW! Elisabet's husband was not yet sixty when diagnosed with Motor Neurone Disease (MND) Amyotrophic lateral sclerosis (ALS) and Frontotemporal dementia (FTD). This memoir, a retrospective diary, is about the year they lived with his terrible two illnesses; illnesses they knew nothing about before the slow and challenging path towards diagnoses. Elisabet took care of her husband while his increasing needs progressed

in relation to how we treat strangers in the form of immigrants and other communities

vividly illustrated with the gynocentric art of Erna Kuik

and they began exploring art and poetry together as young men

His heart had failed and was operating at less than 20%

he doesn’t know how to handle his emotions

led to mass evictions in the Bay Area

Convinced that the current names of the days of the week should be changed to words that represent the true God of the universe

As the book begins: ‘Long as I can remember I’ve been pursued/by a suspicion of yellow at my back’ (‘The Lion’)

or maybe Bukowski

Moss's powerful words speak to us all

" - Nicholas Shakespeare

journeys in understanding and enlarged